Cardiac Sarcoidosis

HELP!!! I don’t know what is happening to me…

My muscles are weakening and twitching all the time. I have been dropping things constantly. My muscles feel like they are in a sleep state. That feeling you get when your leg falls asleep after being in a certain position for a long time. That annoying ache that you can’t wait to subside so you can move on. Well that’s not happening. From my neck down, all the muscles are in that sleep state. I feel like crying all the time. When I walk my legs buckle from up under me causing me to fall all the time. I use a walker as it is because of two recent Lacunar strokes. I fear this Sarcoidosis has finally won after 17 1/2 years. HELP!!! Anyone else suffer with this? I made an appointment with my neurologist in two weeks. It’s just lasting to that appointment. HELP!!!

This explains me to a “T”

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Cold Sweats and Night Shakes

It’s 4 a.m. and I’m up with the freaking chills. Sheet, wool blanket and two comforters later cold shakes becoming controllable. Sarcoidosis SUCKS!!! Can’t wait to see Dr. Kavuru (formerly with the Cleveland Clinic, now practicing at Jefferson Hospital in Philadelphia, Pa) on Monday. Driving to another State to get answers and prayerfully help is finally relieving the stress my family has been dealing with, because of the non help/somewhat from doctors within our State. Now back to the freaking shakes. My hands are even cold whilst I’m typing this. Lord, all I ask is for prayer. I know I’ll get through this because everyone knows, I am and always will be a warrior. I may have Sarcoidosis but it won’t have me!

Just another rant from yours truly ^_~

Marilyn’s Fight for Life Let’s KICK Sarcoidosis