I just wanted to share with you guys about the severe neuropathy flare that I’ve been experiencing for the last 2 1/2 months. So severe that I have seen three doctors just to get some answers and some relief for my whole body swelling to the point it seeped fluid.
My legs and feet were so hard that they didn’t even pit. My husband and I didn’t think it was fluid at first. It literally felt like I had fifty pound weights attached to each leg. I have to be assisted with everything including washing and eating. This pain is extreme. My hands were the worst. They literally have no feeling in them. Typing this is very painful but I had to share my experience. My hands felt like they have frostbite and they are on fire at the same time. Rubbing them didn’t help. The only relief was to submerge them into scalding hot water. This kept me up all night. Each joint was so painful that I couldn’t even hold a fork or cup. The main problem was trying to get the doctors to understand what I was explaining to them.
So the final diagnosis was both a rheumatoid arthritis and neuropathy flare at the same time. The treatment was to put me back on 10 mg of Prednisone again. I had been weaned off of Prednisone 5 weeks before after have taken it for 20 years for my Chronic Sarcoidosis. I was also prescribed Baclofen, which is a muscle relaxer for the severe spasms that started with the flare.
The swelling has receded some and my mobility is very strained because of the trauma to my body. The doctors have all stated that is all they can do because my body is too sick. This all to say, please keep me in your prayers.
Marilyn’s Fight For Life Sarcoidosis Advocate/Warrior
#MarilynsFightForLifeKICKSarcoidosisCampaign #Fighting4ACure #LivingWithChronicPain #LivingWithAnInvisibleIllness #SARCOIDOSISAWARENESS #SarcoidosisWarrior #RareDisease #SupportSarcoidosisResearch #ASongForLife #FoundationforSarcoidosisResearch #FIBROMYALGIA
The love of my life is celebrating his birthday today. This man has a heart of gold and a giving soul. He is the epitome of a man of The Most High, letting his light shine so that others may see The Most High in him. Those that know Karl or come in contact with him see how humble he is with the gift of music that The Most High has blessed him with. He has taught those that went on to become the best they can be in the business without expecting thank you’s or any form of recognition from them. I think of the story of Joseph when I see my husband in action. You get what I am saying? Well today I celebrate with the man that The Most High has blessed me with and celebrate his excellence.
I love you so much Karl McNeill Sr. I love you now and forever more.
Please take a minute out of your day and call your State Senators and Congressman/Congresswomen to vote against Paul Ryan. We cannot go back to less than optimal care for our chronic illnesses. http://mobile.reuters.com/article/idUSKCN0XP00C
Woke up this morning after a very sleepless night feeling heavy. Muscle and joint pain with spasms caused me to require assistance from my husband to get dressed and downstairs. When asked what was going through my head I stated that I felt as a failure to be a mother, failure to be a wife, failure as a Sarcoidosis Advocate and now failure as an Acti-Lab Ambassador. Why, because my health is deterring me from living as I ought to be. My 50th birthday is this upcoming Friday, June 3rd. Where I wanted to be and where I am now is not as I expected. The problem is should I accept it or should I change it.
Two new masses found on my lungs, a breast cancer scare, Cardiac Sarcoidosis issues, NeuroSarcoidosis issues, Fibromyalgia flare, new doctor, multiple testing, new medication changes, medical insurance issues, etc… This is just been the last three months. This could make a person very stressed and it has. I watch my husband working himself to death just trying to make ends meet. He never asks for help and he never complains, but you can feel his spirit shift. I am scared for him.
The only way that I could help without sitting on the corner with a cup in my hand was to find something that I could do when I could do it. Something that is not so stressful that I would get overwhelmed. So I started my own business and it is, not for not trying my damnedest, getting off to a slow start. I thought that of those that are most important to me, would have been my first clients. Not happening. No, I cannot work in a normal setting due to my illness and knowing this I thought that support would have come fast and everyone would be happy that I am trying and that something has motivated me to strive to continue to fight. I understand that everyone has financial problems and I can relate, which I why I jumped into this venture. There is even opportunities for those that can to join me with trying to make some extra income.
Why am I stressing? I truly don’t know because I trust that God has a plan for me. Sorry for venting.
My name is Marilyn McNeill and I am a wife, a stay at home mother, a Sarcoidosis Warriors and an Acti-Labs Ambassador. I am your Sarcoidosis Beauty Warrior. I can offer you products for beauty, skin and weight loss. Acti-Labs is offering me the opportunity to not dwell in the misery of my illness. I have something to aspire to be. To be self sufficient and self sustaining again. Sarcoidosis took away my independence, but being an Acti-Labs Representative is helping me to gain it back. I look forward to helping you with your beauty, skin, and weight loss needs. Take a minute and check out our latest products and while you are there please register yourself and your friends. http://acti-labs.com/me/marilyn-mcneill
Something to keep me busy and able to make money to help offset my medical expenses was presented to me by another Warrior. I am love with this venture! It allows me to sell wonderful products that I use and make money from the comfort of my own home. Many of you know that I am battling a rare and incurable debilitating illness known as Sarcoidosis. Because of this my mobility and living with 24 hr. oxygen support has deemed me disabled. Well with medical expenses increasing each day, I had to find a way to offset that and thanks to my Sister/Friend and fellow Sarcoidosis Warrior, I was presented with a golden opportunity.
Acti-Derm! Offers products for your skin, hair and body. Visit my website and check out all of the wonderful products.http://acti-labs.com/me/marilyn-mcneill Trust me, I am not usually a make-up wearer, but these products are mineral based and left my skin feeling and looking very natural. (pics to follow) There is also opportunities for you to save on the products you purchase by referring a friend to my site. Just follow the links on the page and save. Oh, by the way, the Lipo Sculpt or Thermo Slimming Wrap Kits helps you to remarkably shred inches in a matter of minutes. Verifyably tested and shown to work on arms, thighs and stomach. All of the products will be available for purchase on Mother’s Day, May 9th. So please, check out my Acti-Labs website and help make your life more beautiful. 😉 http://acti-labs.com/me/marilyn-mcneill