After The Scare

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I really hate Sarcoidosis! This dis-ease has taken through many trials and tribulations over the last sixteen years. From being diagnosed in my lungs via a bronchioscopy and being scared to death each time I visited the doctor’s office thereafter. Every doctor asked if I was told how long I was told I was going to live to “you bet you should’ve never smoked.” The thing is, I never did. Next while participating in a clinical trial for a drug call Remicade back in 2001 at the University of Pennsylvania Hospital; Sarcoidosis attacked my sinuses. This resulted in three sinus surgeries and the loss of two of my senses; taste and smell. Later it has attacked my blood, bones, skin and eyes in no chronological order. Now, after an 11 day stint in the hospital after being admitted with congested heart failure and pneumonia, my blood pressures are hard to regulate. Went in with the first reading of 200/115. Scary as you know what. I was also told the my potassium and magnesium levels were dangerously depleted and I had to be admitted if I didn’t want to die. My family took it very hard and stayed with me after being admitted until 3 a.m. We cried, prayed and strategized because that’s what we do. I absolutely love my husband and children. So now what’s being said is that they believe that the Sarcoidosis is attacking my heart which is causing the irregularities in my blood pressures. I am on so many different meds for my blood pressure. One in particular, Hydralazine, causes severe headaches sometimes after I take it. So this brings me back to the title, after the scare of congested heart failure I am fighting for my life with a vengeance now. I want to live a long healthy life. My goal is to eventually get off of these meds and find a way to build my lungs back up to wean off of the continuous Oxygen. So all I ask is for prayers for a healthy recovery please.

As always, peace and blessings to you all. Until next time be healthy, happy and please support Sarcoidosis Awareness by donating via http://stopsarcoidosis.org.

I’ve Started A New Venture! 💜💜💜

FB_20160320_13_28_40_Saved_PictureSomething to keep me busy and able to make money to help offset my medical expenses was presented to me by another Warrior. I am love with this venture! It allows me to sell wonderful products that I use and make money from the comfort of my own home. Many of you know that I am battling a rare and incurable debilitating illness known as Sarcoidosis. Because of this my mobility and living with 24 hr. oxygen support has deemed me disabled. Well with medical expenses increasing each day, I had to find a way to offset that and thanks to my Sister/Friend and fellow Sarcoidosis Warrior, I was presented with a golden opportunity.

Acti-Derm! Offers products for your skin, hair and body. Visit my website and check out all of the wonderful products.http://acti-labs.com/me/marilyn-mcneill Trust me, I am not usually a make-up wearer, but these products are mineral based and left my skin feeling and looking very natural. (pics to follow) There is also opportunities for you to save on the products you purchase by referring a friend to my site. Just follow the links on the page and save. Oh, by the way, the Lipo Sculpt or Thermo Slimming Wrap Kits helps you to remarkably shred inches in a matter of minutes. Verifyably tested and shown to work on arms, thighs and stomach. All of the products will be available for purchase on Mother’s Day, May 9th. So please, check out my Acti-Labs website and help make your life more beautiful. 😉 http://acti-labs.com/me/marilyn-mcneill

Sarcoidosis Research Is Necessary

A friend I never knew Article

http://writeonfighton.org/2016/01/28/a-friend-i-never-knew/