Co-pay restraints

One of the biggest issues persons with chronic illnesses suffer from is not having enough monies to live on, yet alone to cover all of our medical expenses. Many of us have to rely on our SSI to cover our food, shelter, clothes, utilities, medicines, labwork, copays and travel expenses. What we receive is never enough to handle a third of these things. This is why you will find that many of us going without each month and or becoming homeless. That could mean not taking our needed medicines, eating healthy foods or eating at all. Not living with needed heat/air, fresh clean water and sometimes the necessary medical treatment that we need to survive. Many of us avoid going to the ER during emergencies or better yet utilizing ambulatory services because we just cannot afford them. This is sad but very true.

I am disabled and had to leave a job I absolutely loved 21 yrs ago. Going from a very nice two paycheck family to one is very difficult. Watching my amazing husband work two to three jobs at a time to make our ends meet is killing me more than my Chronic illnesses. The little monies I receive each month doesn’t even put a dent in my expenses. We have a strict budget that we adhere to but it changes all the time with each flare up I have. Just when we think we have a handle on it, something changes. This time it was an all of a sudden copay for a specialist that I have been going to for over 5 years. Usually with two insurances, one would offset the other, but not this time.

This has been a continuous factor with me will all of my specialist’s for as long as I can remember. Especially since I was finally added to my husband’s insurance. I experienced an emergency last week and was told to come into the doctors office on Friday and then again for a follow up appointment today. What we didn’t expect was to be hit with a copay issue. My husband and I looked at each other like two deer stuck in headlights. Both of us trying to decide who had the money and also which bill would not get paid this month. I looked at my husband when he put his debit card in the receptionist hand and felt even more of a burden to my family. We really don’t have anything to spare, but then she hit us with a double charge for both Friday and today. That hurt bad. Both of us will suffer from overdraft fees this month, meaning we will be paying a lot more than what was paid today. Sucks for us big time. So what do you think my next step will be? Me too. 😣☹

Anyway, thanks for letting me vent. Peace and blessings to you always and forevermore. 💜❄💜❄💜

Upcoming Sarcoidosis Awareness Month Events

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Hopefuly I listed them all. If I failed to mention your event, please notify me so that I can add it to the list.

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Upcoming Events

Thursday, March 27th, 2014
7th Annual Public health Care Conference & Expo
Bowie, Maryland
Comfort Inn Hotel and Conference Center
10am- 2pm Pre-registration is required
www.mcguireglobalrecruitment.com

Saturday, April 5th, 2014
Sarcoidosis Awareness Purple Tie Dinner and Dance
Boynton Beach, FL
For more information contact Michelle Voce
mvoce@bellsouth.net

Saturday, April 5th, 2014
Marilyn’s Fight for Life Sarcoidosis Awarenss Balloon Relsease Event
New Castle, DE
At 4pm sharp
mommielynn@live.com
https://mommielynns.com/sarcoidosis

Friday, April 11th, 2014
Sarcoidosis Meet and Greet
Rainbow City Community Center
6pm Tickets $10
www.Sarcoidosisoutreachsos.com

Saturday, April 12th, 2014
Candlelight Vigil and Walk-a-Thon
Quincy, FL
For more information contact Michelle Voce
mvoce@bellsouth.net

Saturday, April 12th, 2013
Sarcoidosis Hope Walk 2014
Vivian Lee Maddox Sports Complex
1 Mile fun walk/ 3 mile walk
Contact Alice Minyard 256.442.0463 or www.Sarcoidosisoutreachsos.com

Saturday, April 12th, 2014
10th Annual Sarcoidosis Awareness Walk
5601 S. Braeswood Blvd. Houston, TX 77096
Registration: $25
ERJCC Parking Lot 8:30 AM
www.jsof.org/events

Saturday, April 19th, 2014
Shanetta’s Sarcoidosis Awareness Walk
Michigan City, IN
For more information contact
Shanetta Jordan
shanettajordan@yahoo.com

Saturday, June 21st, 2014
3rd Annual Chad Hammond Memorial Golf Outing
Charles Town, West Virginia
For more information contact Dan
Dan_Conn@comcast.net

Saturday, July 26th, 2014
3rd Annual Deloris D. Mayo Walk
Virginia Beach, VA
Mt. Trashmore Park
http://www.delorisdmayowalk4sarcoidosis.org

Saturday, August 16th, 2014
4th Annual Philip L. Orkin Golf Classic
Sussex, Wisconsin
1pm
For more information contact Jon Orkin
jon.orkin1212@gmail.com

Saturday, August 23rd, 2014
Sarcoidosis 5k/ 1 mile fun run
Long Island, NJ
For more information contact Frank Rivera
www.sarcoidosisofli.com

Saturday, October 18th, 2014
4th Annual Sarcoidosis Awareness Fundraiser
Leggetts Sand Bar
Manasquan, NJ
cathyscause@gmail.com

Cold Sweats and Night Shakes

It’s 4 a.m. and I’m up with the freaking chills. Sheet, wool blanket and two comforters later cold shakes becoming controllable. Sarcoidosis SUCKS!!! Can’t wait to see Dr. Kavuru (formerly with the Cleveland Clinic, now practicing at Jefferson Hospital in Philadelphia, Pa) on Monday. Driving to another State to get answers and prayerfully help is finally relieving the stress my family has been dealing with, because of the non help/somewhat from doctors within our State. Now back to the freaking shakes. My hands are even cold whilst I’m typing this. Lord, all I ask is for prayer. I know I’ll get through this because everyone knows, I am and always will be a warrior. I may have Sarcoidosis but it won’t have me!

Just another rant from yours truly ^_~

Marilyn’s Fight for Life Let’s KICK Sarcoidosis