Am I paranoid or what?

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Well here’s the problem, my baby girl has been running a low grade fever for the last couple of days with a headache. Her body aches too. Now not to long ago she was a passenger in a car that was involved in an accident. She was rushed to the emergency room and diagnosed with a mild concussion, neck sprain, bruised sternum and ribs. She stayed home for two days as instructed by the ER doctor and then returned to school. Her neck stayed stiff and sore. I am contacting the physical therapist tomorrow to get her started but I am wondering if she needs to go back to the doctor. Because I have been battling Sarcoidosis for sixteen years, I am paranoid about my children not recieving the testing to rule out them from being misdiagnosed like I was. Am I paranoid or just concerned? I just don’t want my children to hurt. Just the mommy in me I guess.

Until next time, peace and blessings to all and please be safe during this holiday season.

Marilyn

http://stopsarcoidosis.org/donate

http://gofundme.com/marilynsfight4life

Sharing a Poem

I came across a beautiful poem written by a dear family friend. It speaks to us who live with chronic pain.

Thank you for sharing this poem with me Mario. I bet you are surprised I still had it. 🙂

CLOUDS GONE BY

By Mario Poet Robinson

“CLOUDS GONE BY”

HAVE YOU EVER BEEN DRAWN TO A CLOUD THAT GOES BY

AND WISHED THAT WHAT YOU FELT COULD JUST DRIFT TO THE SKY..

LIKE WHEN THE PAIN THAT YOU BEAR BECOMES ALL YOU DISPLAY.

SO YOU SEARCH FOR OTHER THINGS THAT WILL TAKE IT AWAY…

AND HAVE YOU EVER REALLY WONDERED WHAT IT’S LIKE TO FLY,

TO THE POINT THAT YOU SMILE AND YOU TEAR AND YOU CRY…

LIKE ON THE DAYS THAT YOU FIGHT WITH THE HURT THAT YOU FEEL,

SO YOU DREAM OF OTHER THINGS THAT WILL HELP YOU TO DEAL…

BECAUSE OFTEN I AM DRAWN TO EVERY CLOUD THAT GOES BY

AND I DREAM THAT MY BURDENS COULD JUST DRIFT TO THE SKY…

LIKE WHEN THE HURT THAT I FEEL BEGINS TO SHOW ON MY FACE,

I SEARCH FOR SOMETHING ELSE THAT PUTS A SMILE IN IT’S PLACE..

SO YES, I DO WONDER WHAT IT’S LIKE TO FLY,

TO THE POINT THAT I SMILE AND I TEAR AND I CRY….

LIKE ON THE DAYS THAT I STRUGGLE WITH THE HURT THAT I FEEL,

I SIMPLY GAZE INTO THE SKY BECAUSE IT HELPS ME TO HEAL…

BECAUSE OFTEN THERE ARE TIMES THAT I FIGHT TO BE FREE,

AND FAR AWAY FROM THE PAIN INSIDE THAT WHICH IS ME…

SO SADLY I SIT ALONE AND LET MY FEARS START TO SHOW,

AND THEN I BEGIN TO CRY SO MY TEARS START TO FLOW…

BUT EVERY CHANCE THAT I HAVE, WHEN A CLOUD GOES BY,

I DREAM THAT MY TROUBLES COULD JUST DRIFT TO THE SKY…

SO SURELY, I WONDER WHAT IT’S LIKE TO FLY,

TO THE POINT THAT I SMILE AND I TEAR AND I CRY…

BECAUSE OFTEN THERE ARE TIMES THAT I YEARN TO BE FREE,

AND FAR AWAY FROM THE PAIN INSIDE THAT WHICH IS ME…

A FOR THAT REASON, I AM DRAWN TO EVERY CLOUD THAT GOES BY,

SO I CAN DREAM THAT WHAT I FEEL JUST “DRIFTS” TO THE SKY…

BY: MARIO L. ROBINSON 5-1-09

FOUNDATION FOR SARCOIDOSIS RESEARCH

 

Foundation For Sarcoidosis Research

Foundation For Sarcoidosis Research

Sarcoidosis is an inflammatory disease that can affect almost any organ in the body, causing

heightened immunity, resulting in damage to the body’s own tissues. It is devastating and ruins thousands

of lives in every way imaginable. Sarcoidosis not only destroys people physically, but leaves them feeling helpless

and hopeless as well.

The Foundation for Sarcoidosis Research funds research and facilitates partnerships to advance Sarcoidosis

research, but we need a bigger, stronger army to fight this: won’t you help?

One of FSR’s main initiatives is the creation of the state-of-the-art FSR Patient Registry, which will allow us to collect

a large sampling of sarcoidosis patient data that is absolutely essential to researchers. The patient information above

is just a general overview of the disease’s massive devastation; we need scientific data to further develop treatments

and ultimately a cure for this disease.

The FSR Patient Registry is one BIG step towards finding a cure!

Your donation helps fund research to find a cure for sarcoidosis, enabling projects like the FSR Patient Registry.

The quality of life of thousands for patients, and even life itself, depends on you. Give today.

We Need Your Help!

 

Donate_Now
https://fsr-sarc.patientcrossroads.org/