Trying 2 Live My Life 2 The Fullest

Each day I wake up wondering how I am going to make it through the day. And at night I wonder if it’s my last. The pain is excruciating and the guilt of what I’m putting my family through is overwhelming. But I continue to fight on. Trusting that this too will pass. I find myself reading Psalms 71 over and over again, for in my lifetime Yahuah my Elohim has proven to be my doctor when I am weak. I give my all over to Yahuah and ask for healing from this debilitating disease and ask that he guides those that I entrust for medical care.

I have to see a neurosurgeon in July about scheduling surgical procedures on both my C-spine and my L-spine. Both areas are affecting my nerves and spinal cord. Scared? Yes I am, because of the possibilities of paralysis. Right now I am truly dependent on my family support for what many might take for granted; and also a walker to get around. I am looking into acquiring help for my entrance to be made handicap accessible.

As always I ask for prayers and I will continue to pray for you.

Peace and blessings to you always and forever more,

Marilyn

Sarcoidosis Ribbon

In an effort to create continuity and consistency throughout the Sarcoidosis Community as it pertains to Sarcoidosis Awareness branding, the A Song for Life Sarcoidosis Foundation in conjunction with a few other Sarcoidosis Organization Leaders decided to come together to create an “official” Sarcoidosis Awareness Ribbon that properly reflects the awareness colors and national symbol for the cause. This Sarcoidosis Awareness Ribbon has formally been accepted by Disabled World and included on their online Awareness Ribbons Chart (http://www.disabled-world.com/disability/awareness/ribbons.php). Please feel free to save a copy of this graphic to use for the purpose of Sarcoidosis Awareness. If you are unable to successfully download the graphic, you may request to have a copy of it sent to you directly by emailing: asongfoundation@gmail.com.

Thank you and remember we are stronger together than divided!
Jaz Owens, Founder ASFL Sarcoidosis FoundationImage