A Sarcoidosis Warrior Cry for Help

MFL

Finally up and running. Our family’s United front against Sarcoidosis. We’re fighting for a cure!

People who know me know that I rarely ask for anything unless I am truly desperate. This campaign is very important to me and I have reached out to friends and family for help. Well, I have not received the help I was expecting so I don’t know what to think. This is why there is a need for this campaign. People do not understand how Sarcoidosis affects our lives and that there is a need for awareness and education about Sarcoidosis.

This disease is very debilitating and has left me dependent on oxygen support to breathe. It has me relying on my family’s support and help with little things that many take for granted like combing my hair or helping to get dressed. There is a definite need for research to find a cure. Many patients and their families are fighting for media attention, government attention and medical attention everyday.

What this all boils down to is that I am again asking for donations to help with my campaign to spread awareness about this disease. Please click on the link below and donate today.

https://www.indiegogo.com/projects/marilyn-s-fight-for-life-kick-sarcoidosis-campaign

Upcoming Sarcoidosis Awareness Month Events

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Hopefuly I listed them all. If I failed to mention your event, please notify me so that I can add it to the list.

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Upcoming Events

Thursday, March 27th, 2014
7th Annual Public health Care Conference & Expo
Bowie, Maryland
Comfort Inn Hotel and Conference Center
10am- 2pm Pre-registration is required
www.mcguireglobalrecruitment.com

Saturday, April 5th, 2014
Sarcoidosis Awareness Purple Tie Dinner and Dance
Boynton Beach, FL
For more information contact Michelle Voce
mvoce@bellsouth.net

Saturday, April 5th, 2014
Marilyn’s Fight for Life Sarcoidosis Awarenss Balloon Relsease Event
New Castle, DE
At 4pm sharp
mommielynn@live.com
https://mommielynns.com/sarcoidosis

Friday, April 11th, 2014
Sarcoidosis Meet and Greet
Rainbow City Community Center
6pm Tickets $10
www.Sarcoidosisoutreachsos.com

Saturday, April 12th, 2014
Candlelight Vigil and Walk-a-Thon
Quincy, FL
For more information contact Michelle Voce
mvoce@bellsouth.net

Saturday, April 12th, 2013
Sarcoidosis Hope Walk 2014
Vivian Lee Maddox Sports Complex
1 Mile fun walk/ 3 mile walk
Contact Alice Minyard 256.442.0463 or www.Sarcoidosisoutreachsos.com

Saturday, April 12th, 2014
10th Annual Sarcoidosis Awareness Walk
5601 S. Braeswood Blvd. Houston, TX 77096
Registration: $25
ERJCC Parking Lot 8:30 AM
www.jsof.org/events

Saturday, April 19th, 2014
Shanetta’s Sarcoidosis Awareness Walk
Michigan City, IN
For more information contact
Shanetta Jordan
shanettajordan@yahoo.com

Saturday, June 21st, 2014
3rd Annual Chad Hammond Memorial Golf Outing
Charles Town, West Virginia
For more information contact Dan
Dan_Conn@comcast.net

Saturday, July 26th, 2014
3rd Annual Deloris D. Mayo Walk
Virginia Beach, VA
Mt. Trashmore Park
http://www.delorisdmayowalk4sarcoidosis.org

Saturday, August 16th, 2014
4th Annual Philip L. Orkin Golf Classic
Sussex, Wisconsin
1pm
For more information contact Jon Orkin
jon.orkin1212@gmail.com

Saturday, August 23rd, 2014
Sarcoidosis 5k/ 1 mile fun run
Long Island, NJ
For more information contact Frank Rivera
www.sarcoidosisofli.com

Saturday, October 18th, 2014
4th Annual Sarcoidosis Awareness Fundraiser
Leggetts Sand Bar
Manasquan, NJ
cathyscause@gmail.com