#MarilynsFightForLifeKICKSarcoidosisCampaign #Fighting4ACure #LivingWithChronicPain #LivingWithAnInvisibleIllness #SARCOIDOSISAWARENESS #SarcoidosisWarrior #RareDisease #SupportSarcoidosisResearch #ASongForLife #FoundationforSarcoidosisResearch #FIBROMYALGIA
I listen to everyone talk about their various symptoms and how they are seeking help from doctors here and there. I need help here; in Delaware!
I am seeing a lot of specialist to treat my Sarcoidosis and I really only want to see one. Why is it so hard to have one Sarcoidosis Doctor in my State to treat me? None of my doctors seem to want to communicate with each other except my Rheumatologist who I adore. It’s going on 14 years and I am totally tired of being tired all the time. It seems like I am getting worse rather than getting better. Everything hurts! I don’t want any more pain meds! My hands, even as I am typing this, are swollen, painful and inflamed. When washing my body today, it hurt when the wash rag touched my skin.
Now I am faced with the care of my elderly 85 yr. old mother-in-law and I can’t even care for myself. She has Parkinson’s, but other than that, she gets around better then me. I have the support of my children who all live at home (25, 22 and 13) as well as my husband. Though very understanding of all of this, I feel for them.
Monitoring my numbers, all these meds; tired of it all.
Thanks for letting me vent.
Support Sarcoidosis Awareness & Research