I Feel Useless!!

My God Frank, we are so alike it’s crazy. I just had this conversation with my husband yesterday. Even though he tries to make me feel like it is not true, these are my emotions.

My life as a Rare Disease patient

I write these blogs to give you an insight into just one person who is a terminally ill patient. All of what I write is about me and not trying to speak for anyone else!

I am having many days in which I feel absolutely Useless!!! My body feels like it wants to give up on me but my brain is saying no not going to happen… I am wondering will I ever have a day in which I can do anything anymore. Yes I do things, but I am doing these things in spite of my body! If it was up to my body I feel it would say done… I don’t want to say I am giving up but what your mind and what your body says are two totally different things.

I am always tired, hurting and emotionally drained. More than usual now. I know I was…

View original post 700 more words

A Doctor Appointment that Makes You Think

My life as a Rare Disease patient

So lately the pain for me has unbearable. The last three weeks have been nothing but pain, stomach problems, shaking, extreme headaches and dizziness. That doesn’t even touch the mental aspect of this.

The realization really sit in today when you go to the doctor and they say here is some Vicodin to hopefully ease the pain! They also put me in physical therapy and talked about medical Marijuana.

There will be some that will say good at least they are doing something about the pain.

But then the next words out of the doctor’s mouth ” All we can do now is to try to make you feel as comfortable as possible because there isn’t much else we can do.”

When you hear that the reality of terminally ill diagnosis sets in. I have been trying to get through this, but hearing this today made it harder mentally than…

View original post 359 more words