To the Amazing Husband Behind This Chronically Ill Wife by Samantha Moss

Behind every great man is a great woman, or so the saying goes.
Let’s flip that on its head a little. Behind this chronically ill wife is an amazing husband. A husband who has become a full-time carer. A husband who has gone beyond the call of duty. A husband who has become my legs, my cleaner, my cook, my shopper, my gardener, my driver, my nurse.

A husband who holds my hand when I’m writhing in pain. A husband who heats wheat packs in the middle of the night or makes me a cup of tea in the early hours of the morning, when sleep is completely disturbed by pain.

My husband is nothing short of amazing and I don’t know how, I don’t even want to think about how, my life would be without him by my side.

We share this chronic illness journey, warts and all. He knows me better than anyone else. He can tell when I’m exhausted even before I can. He never complains at this life that has been landed in his lap. He never gets annoyed at me for my limitations. If anything he gets annoyed at me when I try to do things beyond my limitations. That’s when I frustrate him.

It’s a frustration born out of love though. It’s because he knows how much pain I will endure for stretching my limits. He speaks to me of hating what my body is doing to me and how he feels so helpless. That breaks my heart to hear him say that.

Somehow we have managed to create a world of our own that works for us. While it is an extremely limited life, it is also a full and an ever-expanding life. Most of it is spent in the four walls of our home but we are together and we create our own adventures on a daily basis. We laugh and cry together, we read together, we watch our favorite TV shows, we sit in our garden and chat as if on a beautiful date. We share the jobs around the house and keep our environment a place where we want to be.

RESOURCES FROM
GOOD DAYS

Resources for patients
Check out our programs
The Good Days mission
We also have our alone time during the day. I have my online support forum and writing commitments and my husband always has a project on the go that he potters with in his “man cave.” Although we usually only spend two or three hours apart each day that time is precious and important, particularly for a carer.

I was recently asked to write on the topic of “Partners – Where would we be without our partners?”

I have a very simple answer to that question. Lost, lonely and in a permanent residential care facility.

Thank you, sweetheart, for all you do, your devotion, care, acceptance of our situation and your unfailing love.

Words really can’t express my love for you but I hope this article will always remind you that I think you are amazing and I love you so much.

Follow Sam’s story at My Medical Musings.

We want to hear your story. Become a Mighty contributor here.

Photo via michaeljung on Getty Images

Samantha Moss
Follow:
TOPICS
My Condition
JOIN THE CONVERSATION

BetterHelp
Affordable Online Therapy

Affordable Therapy. Anytime, Anywhere.
Living with a chronic illness can impact your mental health. If you’re interested in therapy, BetterHelp can match you with a licensed therapist online. Take a short questionnaire to find your match.
Get started
Related to Chronic Illness
Erin Migdol
Chronic Illness

Kumail Nanjiani Tweets About Watching Wife Emily Gordon Fight Undiagnosed Illness
NewIn the time between first feeling symptoms and getting a diagnosis, there’s a range of emotions that might come up — for not only the person who is sick, but their loved ones as well. Watching someone you love battle an illness, without a diagnosis or any idea of what will happen next, can be […]
60 1 Share
Chelsea Knox
Chronic Illness

When Illness Makes You Redefine the Meaning of ‘Fitness’
NewI’ve struggled often with emerging feelings and difficulties with my self-worth as I shifted from a working, busy and highly active mom to suddenly losing ability to really exercise, walk distances or strength train because of the weakness, which conquers my legs and arms most days. Having just began building a successful, respected name and […]
20 3 Share
Stacey Philpot
Chronic Illness

4 Things You Can Do When Chronic Illness Leaves You Feeling Lost
NewAs a 4-year-old girl, I once peed my pants while hiding inside a circular rounder of clothing at our local Walmart store. Having been somehow separated from my mom for what felt like an eternity, I’d become increasingly afraid of all the unknowns around me. Everything felt foreign, menacing, and overwhelming. As time passed, the […]
33 4 Share
Christie Ray
Chronic Illness

How Living With a Genetic Disease Is Like Running a Race Without a Finish Line
NewI remember in school counting the years until graduation – I thought I would never get to the end. In college it was the same thing repeating itself. Over and over I was always counting the minutes, the weeks, months and years to get to the finish line. No matter where I was, in school […]
173 2 Share
The Mighty Video
Chronic Illness

I May Not “Look” Sick, But…
Contributor Chanel White explains what sick really ‘looks’ like.
See More
Company

Who We Are
Our Team
Jobs & Internships
Archives
Work With Us

Submit Your Story
Partner With Us
Our Partners
Partners and Contributors Login
Advertise with us
Stay in Touch

Contact Us
Join The Mighty Community
Subscribe to
The Mighty Newsletters
Follow Us

© 2018 Mighty Proud Media, Inc. All Rights Reserved. Privacy | Terms

Focus Retriever

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s