Get to know about Sarcoidosis

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— Cloud cover by: Stephe, Managing Editor ^@@^ As posted by the FashionModels micro-blog @Weibo. Nice! I love fire engine red and I love fushia, but I am really digging that cool orange right about…

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Prince Hospitalized After His Plane Makes An Emergency Landing — The Rickey Smiley Morning Show

Following a concert, the private plane of legendary singer/songwriter Prince made an emergency landing and the 57-year-old was reportedly rushed to a hospital in Illinois.

via Prince Hospitalized After His Plane Makes An Emergency Landing — The Rickey Smiley Morning Show

“Barbershop: The Next Cut” Then & Now [PHOTOS] — The Rickey Smiley Morning Show

via “Barbershop: The Next Cut” Then & Now [PHOTOS] — The Rickey Smiley Morning Show

7 Black Whiz Kids Who Will Make Your Day [VIDEO] — The Rickey Smiley Morning Show

After it was announced this week that a Long Island, New York high school senior was accepted to all eight Ivy League schools, NewsOne decided to pay tribute to other students who also achieved major milestones over the past couple of years.

via 7 Black Whiz Kids Who Will Make Your Day [VIDEO] — The Rickey Smiley Morning Show

What a beautiful day today is! 😊

Bernie Mac "Can I Get An Amen?"

Bernie Mac “Can I Get An Amen?”

Today is truly beautiful. The sun is shining on all of the new growth of this season. I thank God for allowing to wake up and witness his wonders. For allowing me to start this morning anew, God is good. For allowing me to be here another day with my family, God is good. For all of the blessings he has gifted me with and for those that I have yet to receive; God is good.

Warriors we must embrace days like today where we can see how God can take something that was barren and bring life anew. We must have faith that one day a cure will be found and we can take back the life that we have lost. We must hope that through all of our outreach to spread awareness about this debilitating disease, that someone will truly hear us and take it to heart. We must pray for all of the doctors that we entrust our care to, will treat us with empathy, sincerity and a williness to find answers to our pain. And finally, we must always find the time to support,each other, because no one truly understands our plight unless they themselves are going through it.

I leave you with these thoughts for today. May all of you continue to pray for me as I do you. And,get out and enjoy the day somehow. 😊

Peace & Blessings,

Marilyn

Where is our Sarcoidosis recognition?

Here it is 16 years after my diagnosis and the knowledge of what Sarcoidosis is or where its origin began is still a mystery.  Why is this? I know for a fact that we Warriors are still fighting for our lives. We are still spreading Sarcoidosis awareness throughout our communities and on social media. We are still wearing our purple and holding our events. We are still obtaining proclamations from our governors of state. So what is the hold up? Why aren’t there more specialists out there to treat the many symptoms and problems caused by the disease and the medicines used to treat it? Why are we still not being treated in the emergency rooms across the country properly? Why isn’t there funding to find a cure? The answer is simple. They don’t care because it is not happening to them.  At least that is my opinion. They are not suffering from the debilitating pain. They are not feeling their lives slip away. They are not dealing with the financial strains that the disease brings on the family. They are not dealing with the lengthy and costly misdiagnosis processes. They are not being looked at like they are crazy.

No energy. Tired of being tired. Pain beyond comprehension. Frustration and loss of self. Financial strain. Loss of friends and family who do not get what Sarcoidosis is or what it does to you.

If anyone else has an answer, please tell me.

Peace and blessings,

Marilyn

MFL

United front against Sarcoidosis. We’re fighting for a cure!