Hello Again…

FB_20150526_14_47_33_Saved_PictureHello again. Yesterday I received an infusion that took 5 hrs. Afterwards I was so very tired and worn out. My stomach ached so much to a point of nausea. But today is a new day and I am alive. What you have to understand is that with disease we could drop at the drop of a dime. The heart is the hardest organ to diagnose. It is usually found during autopsy unfortunately. Biopsies are out of the questions even though the symptoms are there. Chest pain, shortness of breath, arrythmias and tireness. This is a very serious disease that needs to be taken seriously. Til next time, keep me in your prayers as I will continue to pray for you.

Blessings are flowing…

Hi again, As I explained in my previous post that things have been very stressful in the McNeill home. Faced with shut-off notices and the possibility of foreclosure on my home all due to my overwhelming medical expenses. Well God has been good. We have set up a monthly payment plan for our electric so the impending shut-off has been delayed. That is a big load off of my spirit because all of my life saving medical devices run on electric. You probably can imagine what I have been feeling these last few days. Now hopefully the blessings will continue to flow. I have updated the needed amount to include an energy efficient oxygen concentrator and a lighter portable unit. These are very much needed to cut our energy costs and will make me feel less of a burden towards my family. Now as to my health, I have to get an infusion due to my chronic anemia. My hematologist stated that my red blood cells are abnormal and the infusion is eminent. Blood pressure is still running high. I figure due to the stress that I have been under and the chronic pain, my BP is going to continue to run high. All I ask is that everyone please keep me in your prayers as I will continue to pray for you. Marilyn

P.S.: Tanya Murphy, you and your family are in my thoughts and prayers. I am so sorry for the loss of you father. Please accept my sincere condolences from my family to yours. I love you so much Cuz. 🙏

http://gofundme.com/marilynsfight4life

Sarcoidosis

Sarcoidosis

Happy New Year?

Happy New Year 2016

Happy New Year 2016

Yes I am happy to be alive as we start 2016, but no I am scared. Why, because everything is closing in on me and my family. Shut off notices threatning the very machines that I need to sustain my life. Notices that may place me and my family on the streets. Procedures that if I don’t have can cause my death. This is what I am facing because of this invisible illness known as Sarcoidosis. So what I truly pray for during this beginning of 2016 is a cure and a financial miracle. This disease affects the entire family. My SSI barely covers my medical expenses so the weight of it falls on my husband. He’s gonna kill me for posting this because he is a very private person, but the truth is the truth. Not sugar coated. So if you don’t hear from me for a while please know that this is what we are facing. Now here is the hard part, if you can please help and donate to my campaign. http://gofundme.com/marilynsfight4life Every bit helps. Continue to pray for me as I will continue to pray for you.