New Update on my Journey with Sarcoidosis

MFL

Finally up and running. Our family’s United front against Sarcoidosis. We’re fighting for a cure!

Sarcoidosis Plea

Support Sarcoidosis Awareness & Research

 

Lately I have been dealing with excruciating pain throughout my left side. In visiting with my PCP (primary care physician), she suggested that I see a few more specialist including a cardiologist for my heart palpitations. The pain in my rib area is not new. I have had it for years but the doctors never addressed it. The statement was and I quote, “must be muscular.” NO!!! Now that the pain has exacerbated throughout my left side down to my toes, testing and specialist are needed. Well today I have been told that I need knee surgery. Still have to see Spine specialist who will be ruling out or confirming musculoskeletal Sarcoidosis. My blood pressure has been elevated even though I am taking two meds for this. The heart palpitations are keeping me up so I am happy to find out the cause. My PCP believes that the elevation is due to meds and my extreme pain. I just don’t want anything overlooked due to assumptions.
Another thing that I want to please state to those that are still following my updates, I truly appreciate all of those who have donated to my cause, but please do not separate yourselves from me believing this is all I represent. I have heard, “I don’t call or write because I can’t donate.” Sad, huh? Well it hurts me to the core. I do this to bring awareness about Sarcoidosis. I do this to give you a glimpse into my daily journey. A journey that we Warriors deal with on a daily basis. Some worse off than me. I do this to give a voice to those who can’t. So please don’t hesitate to reach out to not just myself, but others who are in situations like me. The worse thing that we Warriors face outside of our pain is loneliness. Family and friends tend to extract themselves out of our life because they don’t want to deal with our struggle. Imagine how you would feel if the shoe was on the other foot per se. Not a good feeling. Prayers are good but just letting us know that you care can make our journey a little easier.

If you you would like to donate to my campaign, I say in advance, thank you so much because I truly need all the help that I can get. http://www.gofundme.com/marilynsfight4life

If you would like to make a donation towards the research for a cure, please go to: http://stopsarcoidosis.org which is the Foundation for Sarcoidosis Research (FSR).

Again, I love you all and will continue to pray for you as I hope you pray for me.

Marilyn

 

What is Fibromyalgia? 

Chronic Pain In The A**

What is Fibromyalgia?

Despite my frequent attempts to explain this condition to my family, acquaintances and even strangers who ask what is wrong with me, I feel like they never really understand WHAT it is. So I thought I’d have a go at explaining it here on my blog.

Fibromyalgia is a long term neurological condition that causes widespread muscular pain. The characteristics of the condition are pain, stiffness and tenderness at specific points of the body- there are referred to as either ‘tender points’ or ‘trigger points’.

As well as the pain aspect of this chronic condition there can be many other symptoms. These include:

  • Sensitivity to pain
  • Muscle stiffness
  • Fatigue
  • Difficulty sleeping
  • Headaches
  • Irritable bowel syndrome
  • Problems with memory and concentration, referred to as ‘Fibro Fog’

It’s important to stress that every person is different and this condition affects different people in different ways. I get widespread muscular…

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