When those who don’t understand say to you, “but you don’t look sick” or “you don’t look in pain”; God hold my peace. NO, I do not wear my disease across my forehead because I don’t want that to classify who I am.
Sarcoidosis has taken so much from me, but I will not let it control my life. I want to live to see my children’s children. I WILL live to see my children’s children.
My mind is going 8000 miles a minute. I cannot close my eyes and just relax. I am constantly trying to think of different ways to bring Sarcoidosis to light. Thinking of more ways to bring awareness about Sarcoidosis to print, media and more importantly to those closest to me. Those who have watched this disease take a toll on my life for the past 14 yrs. I’ve never seen a day of remission. Painful to the point of needing assistance to get around. Causing me to require oxygen assistance 24 hrs. a day and using a BiPap with oxygen support to sleep.
Again, “I don’t look sick” or “I don’t look in pain?” Trust you me, I wouldn’t wish what I live with on a daily basis on my worse enemy.
I have joined up with Janine’s Sarcoidosis Outreach Foundation and the Foundation for Sarcoidosis Research to get as much information as I can out there and to help raise funding for Sarcoidosis research. Hopefully my blog can reach the masses.
Til next time and maybe after a good nights sleep, pray for me as I will always pray for you.