Guidebook for Navigating New Chronic Illness or Disability: Part 1 You Realize You Can’t Work As Much or At All Anymore

The Professional Patient

It’s been less than two years since I entered into the world of the chronically ill and the disabled. In that time, I’ve often wished there was a simple guide to navigating the muddy waters of new illness and disability. For the emotional component of this journey, I have found guidance from the writings of Toni Bernhard, and in particular her book How to Be Sick. I can’t say enough good things about her material, both for those like me and for our caretakers. Her writings are Buddha-inspired, but you needn’t be a Buddhist to benefit from them.

I haven’t found a comprehensive resource about the practical aspects of navigating life with new limitations, though, and as a result I‘ve learned many lessons the hard way. To make this journey easier for others like me, I’ve started to compile some of the resources

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Upcoming Sarcoidosis Awareness Month Events

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Hopefuly I listed them all. If I failed to mention your event, please notify me so that I can add it to the list.

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Upcoming Events

Thursday, March 27th, 2014
7th Annual Public health Care Conference & Expo
Bowie, Maryland
Comfort Inn Hotel and Conference Center
10am- 2pm Pre-registration is required
www.mcguireglobalrecruitment.com

Saturday, April 5th, 2014
Sarcoidosis Awareness Purple Tie Dinner and Dance
Boynton Beach, FL
For more information contact Michelle Voce
mvoce@bellsouth.net

Saturday, April 5th, 2014
Marilyn’s Fight for Life Sarcoidosis Awarenss Balloon Relsease Event
New Castle, DE
At 4pm sharp
mommielynn@live.com
https://mommielynns.com/sarcoidosis

Friday, April 11th, 2014
Sarcoidosis Meet and Greet
Rainbow City Community Center
6pm Tickets $10
www.Sarcoidosisoutreachsos.com

Saturday, April 12th, 2014
Candlelight Vigil and Walk-a-Thon
Quincy, FL
For more information contact Michelle Voce
mvoce@bellsouth.net

Saturday, April 12th, 2013
Sarcoidosis Hope Walk 2014
Vivian Lee Maddox Sports Complex
1 Mile fun walk/ 3 mile walk
Contact Alice Minyard 256.442.0463 or www.Sarcoidosisoutreachsos.com

Saturday, April 12th, 2014
10th Annual Sarcoidosis Awareness Walk
5601 S. Braeswood Blvd. Houston, TX 77096
Registration: $25
ERJCC Parking Lot 8:30 AM
www.jsof.org/events

Saturday, April 19th, 2014
Shanetta’s Sarcoidosis Awareness Walk
Michigan City, IN
For more information contact
Shanetta Jordan
shanettajordan@yahoo.com

Saturday, June 21st, 2014
3rd Annual Chad Hammond Memorial Golf Outing
Charles Town, West Virginia
For more information contact Dan
Dan_Conn@comcast.net

Saturday, July 26th, 2014
3rd Annual Deloris D. Mayo Walk
Virginia Beach, VA
Mt. Trashmore Park
http://www.delorisdmayowalk4sarcoidosis.org

Saturday, August 16th, 2014
4th Annual Philip L. Orkin Golf Classic
Sussex, Wisconsin
1pm
For more information contact Jon Orkin
jon.orkin1212@gmail.com

Saturday, August 23rd, 2014
Sarcoidosis 5k/ 1 mile fun run
Long Island, NJ
For more information contact Frank Rivera
www.sarcoidosisofli.com

Saturday, October 18th, 2014
4th Annual Sarcoidosis Awareness Fundraiser
Leggetts Sand Bar
Manasquan, NJ
cathyscause@gmail.com

Welcome!

R.K. Ryals

Welcome to RKRyals.com!

BANEER

This page offers all things R.K. Ryals. Check out chapter sneak peeks, upcoming events, fan page links, book links, and book news! Please enjoy your visit! You can also find her on Twitter, on Facebook and on instagram.

Mark of the Mage is now an Indie B.R.A.G Medallion honoree!

BRAG MEDALLION COVER

B.R.A.G. Medallion Honoree

What people are saying about these books

If you love paranormal romance with action, adventure, drama, angels, demons, and all kinds of supernatural things going on, this is one series you will most definitely want to read. ~Always YA at Heart

With swoon-worthy demons and snarky heroines, what’s not to love? Ms. Ryals takes a very popular genre and makes it her own. Redemption is unlike anything I have ever read and I am officially a fan for life! ~Pyxi Rose

There’s nothing so satisfying as stumbling upon a book that captivates you from start to…

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Carrie Ann Ryan’s Cover Reveal: Fighting Fate

Cover Reveal: Fighting Fate

by Carrie Ann

FightingFate72Fighting Fate

Redwood Pack Series, Book 7

Coming: June 17, 2014

With her blue-black hair and striking green eyes, Cailin Jamenson is the epitome of beauty and the exemplar of strength. She has fought the enforced boundaries of being the lone Jamenson daughter and Redwood Pack princess, but it is the potential future with the dark wolf in her path that threatens everything she thought she desired.

Logan Anderson’s own darkness provided the reasoning for his abandonment of his former Pack, the Talons. Now, newly accepted into the Redwood Pack, this jade-eyed wolf and all she represents could be his own undoing.

In this final installment of the Redwood Pack, unimaginable tragedy strikes, and the two wolves who have fought the longest for their independence now face the uncertainty of fate and the epic battle that could end the war… and their lives.

Stand Up At The Movies

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Event Details

KeithFromUpDaBlock presents: Stand Up At The Movies.

A combination of hilarious short films, music guest & live STAND UP COMEDY set inside of a movie theatre with state of the art 7.1 surround sound, plush seating ( reclining seats, cup holder, raisable arm rest) , A Larger Than Life Movie Screen, HPS Technology Staging and Dynamic lighting. Featuring Pro Comics from Comedy Central, Bet, Def Comedy Jam, Known Music Acts & Internet Sensations. Produced, Directed and Hosted by Actor, Comedian, Recording Artist & Filmmaker KeithFromUpDaBlock.

Date: Wednesday November 27, 2013 (Thanksgiving Eve)
Location: The Pearl Movie Theatre 1600 North Broad St.
Ages: 17 & up
Tickets: $20.00
VIP PAIR: $60.00 ( PRIME SEATING. LARGE POPCORN, NACHOS OR PRETZEL BITES & BEVERAGE)
Blockaholics: $18.00
Starring: KeithFromUpDaBlock, Peanut Live 215 , Lawrence Killebrew & MORE!

It’s not just a show and it’s BIGGER than an event. IT’S THE ULTIMATE COMEDY EXPERIENCE!  ORDER YOUR TICKETS NOW!!! 

Have questions about Stand Up At The Movies : The Ultimate Comedy Experience?Contact Ruffin Vision/Block-A-Holics:Fans Of KeithFromUpDaBlock

So EXCITED!!! Carrie Ann Ryan Revealed the cover for “His Choice”

Cover Reveal: His Choice

by Carrie Ann

HisChoice72

His Choice

Dante’s Circle Book 3.5

Releases May 27, 2014

As the youngest son of Lucifer, Fawkes has long since known what paths his future could take. He could follow his father’s footsteps, stealing the souls of humans and slowly lose his own, or starve himself and wither away until he finds his true half and forms a bond that can not only save his life, but his soul.

Leslie Masterson’s life has been one torment after another. A submissive wolf, she’s tried to hide in the shadows of her Pack and find the will to live another day. After her brother—the man who has beaten her verbally and physically her entire life—is killed when he challenges the Alpha, Leslie finally sees a path to freedom.

It only takes one look between the two for them to know that they could be the answer to each other’s prayers, but some of the Pack isn’t ready to let Leslie go. It will take the strength of a fiery demon from hell and the love of a submissive wolf to overcome not only their past, but their chance at a future.

His Choice was also found in the Ever After Anthology .

Great Series – Never Understand by Miranda Mailer

Mr Dark and Mysterious offers his hand to help me up. He’s quite gallant in fact. His wrist is olive and strong and his fingers long and masculine. His watch is of an obscurely expensive Swiss make I’ve never heard, worn elegantly relaxed, low on his wrist. The wrist has the dark suit – the white cuff – then the deep-tanned skin of a long-fingered, sinuous, male hand. I feel his power as he pulls me up. I can feel somehow that this hand is strong, yet it’s sensitive enough to hold mine with just the right pressure. It was a kind thing he did there, yet there’s a scintilla of danger in his wealth and self-confidence…”

When waitress and would-be actress, Jana Kidd, bumps into the sexiest man she’s ever laid eyes on, she’s tries to put the vision from her mind. The stranger in the dark suit is rich, powerful and just about the hottest guy in New York to boot. He’s out of her league.

But when the dark, mysterious Johnthen Trent crosses her path again, and again, he compels Jana to take notice – whether she wants to or not. Their passionate affair threatens to run away with Jana, and threatens to ruin her big chance to break into TV acting.

There’s no turn-on quite like power and money, but Johnthen has the looks, the body and is an expert lover too. The thing is: can she trust the mysterious stranger?

Questions and dilemmas begin to overwhelm Jana. Why is Johnthen so private and unpredictable? Who is his “assistant”, Carmen, who never leaves his side? Where did those mysterious scars on his body come from?

Above all, what is his connection with the sexy cult-rock singer from years before?

Follow Jana’s steamy, rollercoaster relationship with Johnthen Trent, as she struggles to understand the real man beneath the ultra-cool, attractive exterior, while fighting to get her first break as a TV actress.

“…He coolly places his drink on the bar, and leans over to me. Am I dazzled by his looks? Before I can think, his lips are on mine and his fingers are in my hair, on the back of my head. His mouth is cool, tasting exquisitely of the gin and lime and his lips are sweet and sensual. Tension and emotion are popping and conflicting all over my body, but his cool tongue is making me melt…”

My review: Johnthen Trent is a sexy, sexy musician/wealthy businessman. If you had to envision a dreamy tall, dark and handsome man; Trent would be the man. Everytime Miranda described him in various scenes, my hands would start sweating and I would get all warm an tingling inside. I could not put the book down. I literally read each book back to back which was awesome because each book picked up where the others left off. The flow was very good. Johnthen and Jana’s relationship was so real. I absolutely recommend this series to everyone, as long as they are over 18+.

If you have not read this three part series you have missed a seriously great read. Having this book in my library for a while and skipped by it over and ovr again. What was I thinking? This is a great book to follow up if you like the 50 Shades of Grey series.

Happy reading!

awesome series

awesome series

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