Pictures of my battle with Sarcoidosis of my Eyes and Sinus

These photos were taken before and after the completion of surgeries on my sinus and both eyes. You can see the large granuloma masses above each eyes and there was also a large mass below the right eye. The operation was done while I was sedated but alert. My Ophthalmologist and I laughed and talked during the whole surgery. The surgery to my sinuses was done three days prior. You see cotton in my right ear due to pain. The third procedure performed by my Otolaryngologist was better than the first two. What you cannot see is the drainage tubes that are stitched within each nostril. Having to use 24 hr. oxygen support is difficult during this time. Had to sleep in a sitting position until they were removed.

These surgeries were performed in 2006.

Lynn's eyes before surgery (3)


I won’t complain…

Purple Rose of Sarcoidosis

Well hello everyone. I have been battling Sarcoidosis for 13 years. It started in my lungs and eventually affected my skin, eyes (surgery removed large granulomas over both eyelids and under right eye), sinus (3 surgeries resulting in no sense of smell or taste since 2006), kidneys, liver, lymph nodes and now bones including joints. Very, very painful but I won’t complain. I don’t have to tell you guys. I am on 24 hr oxygen (3 liters) and also sleep with BiPap w/oxygen but I won’t complain. I was also diagnosed with Fibromyalgia in 2009 which exacerbates my pain, but I won’t complain. My Rheumatologist asked that I seek a 2nd opinion because he was afraid he was missing something. Well I did and that is how the Sarcoidosis of my bones was diagnosed. During these years I have had Doctor’s quit on me because they were, more than often, drawn to tears whilst treating me. I have lost both my parents and two sisters, but i won’t complain. I am seeking a new route of treatment now via Functional and Holistic Medicine. Tried Holistic before but funding out of pocket and being on Medicare, it’s not covered. Still not complaining. So, how is your day?…


Tweets abound: Yes, we have died and gone to heaven because of The Fabulous Seven.

If you missed it, what a show our Rain put on!

(courtesy of

Cloud USA

Cloud cover by: Stephe, Managing Editor ^@@^

The gist of what suave SooBong is saying seems to be that they got out of their hotel safely, and that they all were a bit nervous. I’ll bet they were! The MAMAs were a whole different animal than any other show they’ve done since Rain got out of the Army! #serioussh*t

Thanks for sharing the picture, Ko. Y’all looking sharp! 🙂

(Image and tweet credit: Ko SooBong @Twitter / @photnui, 11/22/2013)



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Watch “Sarcoidosis – dont tell me” on YouTube

Sought out a 2nd opinion…Tired of being in pain..


At the suggestion of my Rheumatologist that I thought I loved, I found someone who examined me, listened to me, read my chart thoroughly and diagnosed what I kind of already knew. Well, my prednisone prescription was tripled and I am to take, after labs, is a drug that is the next step above methotrexate. Forgot what it was called unfortunately.
Sarcoidosis is now affecting my bones and joints. I called it a long time ago because the pain was extreme, but was told it was the Fibromyalgia or Rheumatoid Arthritis. MRIs and Xrays showed that my lymph nodes were swollen, yet it wasn’t being addressed.
All I ask is for prayers and to all who read this, listen to your heart. If it seems as though you are not being taken seriously, seek out another doctor. Don’t waste your precious time making them rich for doing nothing.

The Circulate Series by K.R. Smith

The Circulate Series by K.R. Smith

Just finished Small Fry, Part 1 and I am not disappointed. I absolutely love this series and the fact that Lucia’s birthday just happens to be the same as mines, June 3rd, I feel really special. {{{smiles}}}
Looking forward to the continuation of B and Declan’s adventure. Please don’t make us wait to long.

As I have stated in my previous reviews, I am a visual reader so when reading books I tend to get drawn into them like watching a movie. I believe great sci-fi writers have to embrace that ability to grasp their readers attention and keep them at the edge of their seats, per se. That’s just my opinion. ^~^ K.R. Smith is one who I believe gets it.

Cheers to one of my favorite authors,
Marilyn a.k.a RainCloudMom


Books in the Series:

The Circulate Series