Losing a Snowflake

I am in a very solemn mood today because I have just learned that a Sarcoid Buddy of mine has lost her battle with this dis-ease yesterday.  I am getting madder and madder at the fact that all of the tv stations and radio personalities that I have contacted have not taken me seriously.  This disease needs more awareness just like cancer, lupus, arthritis, MS et. al  What do we have to do to gain the attention that we really need.  With this attention comes more research, more compassion and more overall awareness of this debilitating silent but deadly killer.  More and more of my friends are dying and still nothing is being done about it. 
Rest in peace Sue Beard