Sarcoidosis Walk For A Cure

 

JANINE SARCOIDOSIS OUTREACH FOUNDATION

(A 501 C3 TAX EXEMPT CHARITABLE ORGINIZATION) 

 

PLEASE SAVE THE DATE AND JOIN US!

 

SARCOIDOSIS WALK FOR A CURE

 

OCTOBER 25TH 2008

JEWISH COMMUNITY CENTER

5601 S BRAESWOOD

HOUSTON, TX 77096

REGISTRATION BEGINS AT 7:30 AM

 

IF YOU CANT BE HERE, YOU CAN BE A VIRTUAL WALKER, OR ASK SOMEONE TO WALK FOR YOU.

 

SPECIAL GUEST: DR SALCEDO MD, AND DR RANDLE, MD. BOTH TREAT MANY SARCOID PATIENTS. OTHER GUEST TO BE ANNOUNCED.

 

ENTERTAINMENT, GOODY BAGS, JSOF CHEERLEADERS, VENDORS AND SO MUCH MORE.

 

PELASE JOIN US FOR THIS WORTHWHILE EVENT PROMOTING SARCOIDOSIS AWARENESS, EDUCATION AND RESEARCH INTO A CAUSE AND CURE.

 

FOR PLEDGES, SPONSORSHIP, OR DONATIONS, PLEASE DONATE ONLINE AT WWW.JSOF.ORG, PAYPAL, ANY WACHOVIA BANK, OR MAIL TO JSOF WALK – P.O. BOX 1008, ALIEF, TX 77411.  FOR MORE INFORMATION PLEASE CONTACT US VIA EMAIL OR TELEPHONE 1-800-846-5868.

 

THE FUNDS RAISED WILL AID IN THE DEVELOPEMENT OF EDUCATIONAL MATERIALS, ADMINISTRATIVE SUPPLIES, WEB-SITE DEVELOPMENT AND THE PRODUCTION OF JSOF SARCOIDOSIS PUBLIC SERVICE ANNOUCEMENTS, AS WELL AS OUR WALK FOR A CURE EXPENSES.

 

THANKS FOR YOUR SUPPORT

Emma Carroll
Executive Director
832-248-6621
 (Raise money for janine sarcoidosis outreach foundation just by searching with GoodSearch
www.goodsearch.com – powered by Yahoo! )
 
Empowering the Community through Sarcoidosis Education and Outreach

1st official day of physical therapy

Well, I tried it and so far my pain has not minimalized.  I admit that I pushed it a little too.  When I am in public I try not to show to much.  Am I wrong for doing that?  It’s just me I guess.  I did tell the therapist when it hurt and how much it hurt though, but I finished my exercises.  They have me doing aqua therapy which isn’t too bad except for wearing a bathing suit in public.  I am still not comfortable with my skin.  Also I do the stationary bike and arm exercises.  I just want to know when do I receive the massage therapy that was prescribed.  With the fibromyalgia, I thought that  that was supposed to help.  Pain or not, I need a massage.  Anywho, the question my family has for me is will I go as prescribed.  I told them that as long as it doesn’t cause us anymore financial hardship than we already have with my many medical bills, than I will.  Will see>….
 
Take care and be blessed…

Trying to spread awareness

Hello everyone,
I have started yet another Sarcoidosis Support Forum to help to promote awareness for this dis-ease.  Please check it out and join if possible.
It is within a health site entitled "Revolutionaryhealth.com". 
 

My latest dilemma

After a very needed visit with my rheumatologist, he stated that because of my chronic sarcoidosis and fibromyalgia he wanted me to start a new drug called "Lyrica".  Everyone knows of this drug because of the advertisement on every television channel.  Its main focus is for treatment of fibromyalgia.  My doctor told me that this would not cure me, but it would help me with some of the pain.  I figure that my body has gotten used to the Vicodin because I rather not take it now because it doesn’t help.  Well, here is the dilemma.  When my husband took my perscription to the pharmacist he was told that Medicare would not cover it.  They advised me to take another drug and after it failed, they would then fill the perscription for Lyrica.  Have you ever heard of a thing?  They know nothing about me but what is  on paper.  Here is a doctor that has been taking care of me for years and knows that I only want to get better, but they rather risk my life because of money.  We truly know that my life means nothing to the government.  They rather people like me keel over so that they wouldn’t have to spend so much to keep me alive.
 
What are your thoughts on this?