Sarcoidosis Granulomas of the Orbits

Well, after yet another trip to yet another opthamologist, the verdict is in… I have to have surgery!  The procedure is called a "Bilateral Orbitotomy and Excision of Right Lower Eyelid".  The doctor stated that the granulomas have invaded my lacrimal glands and he will do his best to make me look like my old self.  I appreciate going to a physician who has knowledge of this dis-ease.  It makes me feel more at ease.   First, of course, I have to undergo a complete set of preliminary tests.  The doctor told me that I was definitely going to have to stay overnight because of my 24hr. Oxygen use and the use of anesthesia.
 
I will keep you informed.

When do you say when….

lI had a doctor’s appointment two weeks ago that didn’t go well.  My doctor, in the midst of doing an accuppressure treatment, fell asleep.  I knew he was dozing off, but the kicker is that he didn’t think I knew it.  I go to him for pain therapy to say the least, I was in more pain after leaving than before I got there.  I was suppose to go to him tomorrow but of course I cancelled.  The thing is, I really like his methologies and he seemed as if he truly took an interest in helping me to beat this dis-ease.  This really pissed me off.  My family couldn’t believe that I didn’t raise cain right then and there, but I just wanted to get out of there as soon as possible.  One thing that I noticed about most of us who suffer with Sarcoidosis is that we are just trying to find answers and are interested in anyone who lends us that ear.  What I mean is that we always get that "the pain is in our head"; or "there is nothing wrong with us".  This is why I am in this dillema.  I want help, but I don’t want to have to deal with someone who can’t just honestly say, "I am to tired to give you my best today."
 
Also, I am dealing with the enlarged nodules on both of my eyelids and beneath my right eyelid.  I tried the Tobradex treatment for two weeks but it didn’t work.  Now I have to see another Opthomologist to recieve direct steriodal injections in all of the affected areas.  Can you say, OUCH!!!!   Will let you know how that goes..
 
If you haven’t by now, please join the Sarcbuddies support group.  It is something that all of us need as well as our families.

Update on the showcase

This event has been postponed!!!!

A.B.O. & OHS Entertainment Groups Showcase and Networking Event

 

A.B.O. ENTERTAINMENT GROUP

AND

OHS ENTERTAINMENT

 

Proudly Invites you to a music showcase & networking event

 

WHEN:  MARCH 9, 2008

WHERE:  THE CRYSTAL CENTER

                 728 PHILADELPHIA PIKE

                 WILMINGTON, DE  19809

TIME:  12:30 – 3:30 PM

FOR MORE INFORMATION, CONTACT LYNN:

PHONE (302) 743-3346

EMAIL: ABOENTERTAINMENTGROUP@COMCAST.NET

 

NETWORKING PARTNERS:

BRIDAL CONSULTANTS, BRIDAL BOUTIQUE’S, CATERERS, COSMOTOLOGISTS, EVENT PLANNERS, FLORISTS, PHOTOGRAPHERS, VIDEOGRAPHERS, ETC…