Sarcoidosis Support Groups

  • American Lung Association of Delaware
    1021 Gilpin Avenue, Suite 202
    Wilmington, DE. 19806
    Contact: Tricia Monnig
    (302) 655-7258  (800) LUNG-USA (586-4872)
  • Arthritis Foundation, Delaware Chapter
    222 Philadelphia Pike
    Wilmington, DE.
    (302) 764-8254
  • Problems getting treated

     Trying to obtain an appointment with one of the top Sarcoidosis specialist here on the East Coast is a task.  My pulmonologist referred me to a doctor who has a great reputation with treating problematic patients like myself.  When I first called several months ago I was told that his first available wouldn’t be until June 2008.  Knowing that my doctor wanted me to be seen a.s.a.p., I let the scheduler know that I would be calling back in a couple of days after confirming if this was okay with my doctor.  My doctor stated that he would call to see if he could get me in sooner.  Well it has been some time now and I called to see if an appointment was made.  The scheduler told me that this particular doctor was not taking anymore new patients.  What am I to do now?  This has been the story of my life for the past 7 years.  Doctor’s that I need to see are not in this area and or not receiving new patients. 

    Talking about My life with Sarcoidosis



    My life with Sarcoidosis

    It is now 5:47 am after a long day and night suffering with a lot of body and chest pain.  I wish there was a cure for this so that I won’t have to deal with these types of days and nights.  I really do not like what it does to my children when they see me in pain.  I just assure that it is only for a minute but mom will be okay. 
    I went to the doctor today and she spoke of more patient’s coming to her with this disease.  I think that it is an epidemic here in this state.  It makes you think……
    All and all, I remain positive knowing that this is just a test and God will pull me through.